Better stated, what are you waiting for? Before we had children, and she was a
stay-at-home-mom, Nita was a part owner
of a small consulting firm that sold ERP services. They did pretty well. I was at Dell when they were still giving out
stock, bonuses, and paying on realistic quotas with accelerators for
overachievement. The net effect was that
Nita and were filling up our savings and investment accounts pretty nicely…not
net jets nice, but nice enough. We saved
a lot, but we also traveled a lot.
Our honeymoon was a nice Italian adventure, we went on cruises,
traveled to watch my buddy on the PGA tour, etc. Then the stock market correction of 2008 took
about 25% of our assets. Our investment
guy at the time asked us “where’d all the money go?” The short answer was in two parts (actually
three): 1. we spent some and enjoyed life. 2. Your job was to protect us from
those corrections. 3. You’re fired.
We still have money squirrelled away, so don’t go starting a
go fund me account or anything, that isn’t where I’m going with this. There’ll be time for that when I’m gone if
the family needs it. My point is while
we were still betting long on the future, we were also taking the time to enjoy
the present. That is what my current
situation has really helped me hone in on, enjoying each precious moment with
my friends and family.
This Wednesday I went to chapel with my daughter’s preschool
class. I sat in the front row and
watched her sing, dance, and sign all the songs about the glory and power of
God. I am not ashamed to say I teared up
a little. This was always my vision for
choosing a preschool. To help us
establish a foundation of prayer and faith, in a loving community. It was nice to see that the choices we’ve
been making are working according to plan.
We had a parent teacher conference with Connor’s teacher and the
assistant principal and we went over some plans for him. Connor has a lot of personality and maybe a
bit too much of his father in him. In
any case, it was wonderful to see two educators in public school (no slight
intended) accept so much responsibility for his development. As parents we’ve been doing a LOT with him,
but this has been more than a pleasant surprise, and our blessings keep rolling
in.
I’m still coaching and helping their soccer teams this fall,
and this spring will be coach pitch for Connor. Josie has mentioned she might
want to try baseball or softball. I hope
I’m not shuttling back and forth to Houston at that time because baseball is
the sport in which I can help them the most, but just in case I’m spending my
time capital with them now. We also had
a friend donate her time and do a photo shoot with us this week. We figured the Christmas cards should include
hair. So we’re taking the time to do all
our fun family stuff now. We might even
camp in the backyard next weekend. Because we don’t know how much time is left, and
what am I saving it for?
I had lunch with one of my best friends this week and we
talked about how everyone is doing, reacting, and responding to my
development. Over the past month or so people
have really opened up about their experiences with cancer, depression, other
major illnesses, chemo, etc. There are a
lot of folks who have been through some form of this. I guess it is a lot like the military. If you’ve been to war, you understand what
those guys are going through, if not, you can only use media, movies, and your
imagination to try to understand…but it is never quite the same or as
real. I sincerely appreciate the empathy
and the attempts at understanding, and I clearly don’t wish this on
anyone. But it has been a gift at the
same time. Yes a gift. I think other survivors will tell you the
same.
I am now more patient with my wife and children…and even my
mother. I take the time to smell the perennial
flowers (humorous aside - doctor and med friends, I originally misspelled
perennial and my autocorrect put perineal- that’s the “taint” for all you
laymen out there). Previously if my kids
barged in my home office to show me a picture or show me a bug/lizard they
captured, I’d shoo them out and close my door until I’d finished the
project on which I was working. Now I
stop what I’m doing and share their excitement, give them the attention they
deserve, and get my hugs and kisses in.
The children have never been happier and neither have I. There is nothing quite like watching your
children’s faces light up with excitement, and it doesn’t have to be a treat or
a present. It can be 30 seconds of
undivided attention and enthusiasm. How
much of this have I missed out on? Last
night I even crashed my wife’s book club event and we all went to see The Martian at the drafthouse. No spoiler, but talk about a guy who refused
to give up and retained a sense of humor.
I see signs all around me that give me confidence. It seems like a new prayer shawl comes in the
mail each week. Cards and letters,
emails, and texts of encouragement are constant.
Statistically things aren’t good, so let’s just put that out
there. For those of you who may be
thinking, “Wow, maybe it isn’t as bad as we thought.” It is.
But, that is a statistical distribution against my entire peer
group. I had a conversation with my SEAL
buddy again this week and I asked him what percentage of all military personnel
could get through BUDS and then go on to become a SEAL (or Delta, Ranger,
etc.)? He said about 100th of
a percent. I then said, well guess what,
I’m competing against a bunch of 70 year olds, who have already done
everything, watched their kids grow up, and who might be alone in their fight. In
fact at MD Anderson I saw some of those guys and asked, “What the hell is that
guy hanging on for?” which morphed into “If THAT guy can do it, I certainly
can.” Let’s face it, I have a lot to
live for, an iron will, fairly high pain threshold, and I’m not afraid. Where would you put me on the bell
distribution? It’s kind of like the old camping/hiking
joke when the bear shows up. You don’t
have to out run everyone, just one guy.
In my case, I have to out-fight about 85 out of 100 guys, but I still like
my chances.
Next week we’ll tell the children the whole story, or as
much as they can realistically consume without scaring the shit out of them. It’ll be inevitable due to the pump I’ll be
wearing for a couple of days every two weeks, my immune system changes,
potential lethargy, and the likelihood of my hair loss. I’ve been rehearsing how I’m going to tell
them, but whether I’m completely ready or not it’s time. There are “team Marco” bracelets all over the
place, a “Stomp Cancer” t-shirt that my office made, and many of our friend’s
children are adding me to their nightly prayer list. Someone is bound to say something to the
kids, and well I’d rather it be through the lens in which I frame than the
shock of “Hey I’m sorry your dad is dying, but don’t worry I’m praying for
you.” I’m guessing it’s better to be
proactive on that than reactive.
Finally, I won a small concession in my treatment. My port was installed this week and I was
supposed to potentially start chemotherapy next week…but I asked my oncology
team if I could wait one more week.
Why? All my Aggie brothers
already know the answer to this. Because
A&M plays Alabama on the 17th and frankly I want to consume a
few bourbons during this game before I effectively go dry for the next 9 months
to a year (or so). Yes it is worth it,
and yes it matters for those of you rolling your eyes. So as you can see, like the character in The Martian, you don’t have to give up
or give in. The goal is to hang on until
the science catches up in time to rescue me.
I think I have what it takes. In
the meantime, what are you waiting for?
Go enjoy life, spend some money before the next crash, and live in the
present. Tell everyone who is important
to you that you love them, they deserve it…and so do you.
Thank you for the reminder to be savoring those moments with the kids. Easy to stay wrapped up with work or the phone. But so much more important to be present with them. Best of luck in talking to the kids -- hope it goes as well as a conversation like that can go.
ReplyDeleteAwesome blog post Marco. Carpe diem! I've always looked up to you for living in the moment. It's clear from your blog and your FB posts that you cherish your time with your family and friends. Thanks for the reminder that everyone needs to stop and smell the roses and keep life in perspective. I have complete confidence you will beat 85 out of 100.
ReplyDeletein 2nd Corinthians 12:9-10 Paul is talking about the thorn, Satan sent to him and this is the Lord's response. Cancer is your thorn but you need to remember these verses.
ReplyDelete9 But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. 10 That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.
Great post Marco! I loved the autocorrect "perineal flowers" (LOL). Thoughts and prayers are with you and your family. Stay strong, stay positive!
ReplyDeleteLOVE YOUR WORDS! BLESSINGS!!!
ReplyDeleteBeautiful Marco!! Praying for you guys PRESENTLY! Sending you and your family a big warm hug!!
ReplyDelete